Herpes Patient Advocates Call for Increased Research and Support

By Lou Portero - April 27, 2023

In recent years, herpes has become a significant public health issue, affecting millions of people worldwide. This highly contagious infection, caused by the herpes simplex virus (HSV), often goes unnoticed due to its asymptomatic nature. However, for those who do experience outbreaks, the physical and emotional consequences can be devastating. The stigma surrounding herpes further compounds these challenges, making it difficult for individuals to seek support and proper medical care. Consequently, a growing community of herpes patient advocates is demanding action, calling for increased research and support for those living with the condition.

Herpes is a pervasive problem, with the World Health Organization estimating that two-thirds of the global population under the age of 50 have HSV-1 (which primarily causes oral herpes), and approximately 13% of people aged 15-49 years have HSV-2 (which primarily causes genital herpes). Despite these staggering statistics, herpes research has been historically underfunded, and treatment options remain limited. As a result, patient advocates are pushing for increased funding and research to develop new treatments, a potential cure, and more effective prevention methods.

A recent STAT News article highlighted the growing demand for action from herpes patient advocates. These advocates argue that the lack of attention and funding for herpes research perpetuates the stigma associated with the condition, making it harder for those affected to seek help and support. Many individuals living with herpes report feeling isolated and discriminated against, leading to a lower quality of life and increased mental health issues.

Organizations such as the American Sexual Health Association (ASHA) and ProjectAccept.org have been at the forefront of this advocacy work, providing resources, education, and support for those living with herpes. ASHA offers comprehensive information about herpes, including its transmission, prevention, and treatment options. Meanwhile, ProjectAccept.org aims to raise awareness and eradicate the stigma surrounding herpes through community outreach, education, and support services.

The call for increased research and support from herpes patient advocates is an essential step towards destigmatizing the condition and improving the lives of those affected. It is vital that governments, researchers, and healthcare providers recognize the impact herpes has on individuals and society and allocate appropriate resources to address this public health issue.

By increasing funding for herpes research, new treatment options and preventive measures can be developed, ultimately reducing the prevalence of the virus and improving the quality of life for those living with it. Additionally, providing comprehensive support services and education about herpes can help dispel misconceptions, encourage open conversations, and foster a more inclusive and understanding environment for those affected by the virus.

In conclusion, it is time for the global community to heed the call of herpes patient advocates and invest in research and support services for those living with the condition. By doing so, we can work towards a future where herpes is no longer stigmatized and those affected can live fulfilling lives without fear of discrimination or isolation.


Soures: STAT News

American Sexual Health Association


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